|By Business Wire||
|June 6, 2014 01:00 PM EDT||
A young father who blogs about his fight with stage 4 melanoma and a mural artist who struggled to access her cancer-stricken husband’s medical records will share their unique perspectives with the professionals responsible for the research, development and regulation of drug therapies at the DIA 2014 50th Annual Meeting.
T.J. Sharpe, of Fort Lauderdale, Fla., and Regina Holliday, of Grantsville, Md., are among the patient advocates with a one-of-a-kind opportunity to present with drug industry leaders at the DIA Annual Meeting from June 15 to 19 at the San Diego Convention Center. They will discuss their experiences with urgent issues facing patients, such as enrollment in clinical trials and access to electronic medical records.
“Each patient advocate presenting at the meeting has a compelling story of determination and resilience, and there is no other meeting in the world that joins these forces together to accelerate health care solutions,” said Barbara L. Kunz, DIA global chief executive. “A key focus of DIA is to put the patient first when facilitating vital collaboration between industry, research and regulatory arenas.”
Philly.com’s “Patient #1” blogger Sharpe, who was the first patient in the world to undergo an experimental sequence of treatments to fight his cancer, will be sharing his experience in clinical trials when he speaks at a session on “The Patient Point-of-View: An Unrehearsed but Revealing Conversation to Rectify Patient Enrollment,” scheduled for June 18 at 10:30 a.m. Presenting at the DIA Annual Meeting is an opportunity for Sharpe to speak directly with those who spearhead research that can save his life.
“I am the luckiest guy in the world with cancer: I was able to get into not one, but two clinical trials to study milestone drugs,” Sharpe said. “Speaking at the DIA Annual Meeting allows me to share my story with an audience of professionals who make treatment a reality.”
Holliday will highlight a new initiative, the Blue Button Project, which will pioneer patients’ access to their electronic medical data, helping them track their progress and providing them the ability to share their information among specialized care teams during treatment. She will share her story of facing hurdles to access her husband’s medical data after he was diagnosed with inoperable kidney cancer — data that Holliday says could have changed the course of his treatment. The “Enabling Participants’ Access to the Electronic Clinical Trial Data: The Blue Button Project” session will be held on June 17 at 1:30 p.m.
“If we had been able to fully access my husband’s data, we could have changed his treatment — he might be in remission, or we could have made informed decisions about surgery or considered hospice care,” said Holliday, whose husband died in June 2009, less than 12 weeks after he was diagnosed. “I want to share my story with professionals at the DIA Annual Meeting who are dedicated to learn from us and work with us to drive treatment for those like my husband.”
On June 16 at 4 p.m., Holliday will host The Walking Gallery, bringing patient stories to life through narrative paintings on jackets worn by patient advocates, survivors of disease, caregivers and others who have lost loved ones to illness.
Other patient advocates who will be presenting at the annual meeting include:
- Kristin Voorhees, a celiac disease patient and health care relations manager for the National Foundation for Celiac Awareness, who will lead the “Filling the Gaps and Speeding Up Results: What an Educated, Sophisticated Patient Population Can Do for You” session on June 18 at 3:30 p.m.
- Bonnie J. Addario, a lung cancer survivor and founder of the Addario Lung Cancer Foundation, who will present at the “Bringing the Patient Voice to Clinical Development” forum on June 16 at 8:30 a.m.
ABOUT DIA: DIA is the global connector in the life sciences product development process. Our association of more than 18,000 members builds productive relationships by bringing together regulators, innovators and influencers to exchange knowledge and collaborate in a neutral setting. DIA’s network creates unparalleled opportunities for the exchange of knowledge and has the interdisciplinary experience to prepare for future developments. DIA is an independent, nonprofit organization with its global center in Washington, D.C., USA, and regional offices covering North and South America (Horsham, Pa., USA); Europe, North Africa and the Middle East (Basel, Switzerland); and Japan (Tokyo), India (Mumbai) and China (Beijing). For more information, visit www.diahome.org.
ABOUT DIA’s 2014 50th ANNUAL MEETING: Celebrate the Past – Invent the Future is the largest multidisciplinary event that brings together a community of life sciences professionals at all levels and across all disciplines involved in the discovery, development and life cycle management of medical products. The meeting aims to foster innovation that will lead to the development of safe and effective medical products and therapies for patients. For more information, visit www.diahome.org/dia2014.
SYS-CON Events announced today that MetraTech, now part of Ericsson, has been named “Silver Sponsor” of SYS-CON's 16th International Cloud Expo®, which will take place on June 9–11, 2015, at the Javits Center in New York, NY. Ericsson is the driving force behind the Networked Society- a world leader in communications infrastructure, software and services. Some 40% of the world’s mobile traffic runs through networks Ericsson has supplied, serving more than 2.5 billion subscribers.
May. 29, 2015 01:00 PM EDT Reads: 1,456
We are reaching the end of the beginning with WebRTC, and real systems using this technology have begun to appear. One challenge that faces every WebRTC deployment (in some form or another) is identity management. For example, if you have an existing service – possibly built on a variety of different PaaS/SaaS offerings – and you want to add real-time communications you are faced with a challenge relating to user management, authentication, authorization, and validation. Service providers will w...
May. 29, 2015 01:00 PM EDT Reads: 4,252
Scott Jenson leads a project called The Physical Web within the Chrome team at Google. Project members are working to take the scalability and openness of the web and use it to talk to the exponentially exploding range of smart devices. Nearly every company today working on the IoT comes up with the same basic solution: use my server and you'll be fine. But if we really believe there will be trillions of these devices, that just can't scale. We need a system that is open a scalable and by using ...
May. 29, 2015 01:00 PM EDT Reads: 6,919
Thanks to widespread Internet adoption and more than 10 billion connected devices around the world, companies became more excited than ever about the Internet of Things in 2014. Add in the hype around Google Glass and the Nest Thermostat, and nearly every business, including those from traditionally low-tech industries, wanted in. But despite the buzz, some very real business questions emerged – mainly, not if a device can be connected, or even when, but why? Why does connecting to the cloud cre...
May. 29, 2015 12:42 PM EDT Reads: 171
SYS-CON Events announced today that O'Reilly Media has been named “Media Sponsor” of SYS-CON's 16th International Cloud Expo®, which will take place on June 9–11, 2015, at the Javits Center in New York City, NY. O'Reilly Media spreads the knowledge of innovators through its books, online services, magazines, and conferences. Since 1978, O'Reilly Media has been a chronicler and catalyst of cutting-edge development, homing in on the technology trends that really matter and spurring their adoption...
May. 29, 2015 12:30 PM EDT Reads: 742
SYS-CON Events announced today that BMC will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. BMC delivers software solutions that help IT transform digital enterprises for the ultimate competitive business advantage. BMC has worked with thousands of leading companies to create and deliver powerful IT management services. From mainframe to cloud to mobile, BMC pairs high-speed digital innovation with robust...
May. 29, 2015 12:15 PM EDT Reads: 909
Imagine a world where targeting, attribution, and analytics are just as intrinsic to the physical world as they currently are to display advertising. Advances in technologies and changes in consumer behavior have opened the door to a whole new category of personalized marketing experience based on direct interactions with products. The products themselves now have a voice. What will they say? Who will control it? And what does it take for brands to win in this new world? In his session at @Thi...
May. 29, 2015 12:13 PM EDT Reads: 250
Software development, like manufacturing, is a craft that requires the application of creative approaches to solve problems given a wide range of constraints. However, while engineering design may be craftwork, the production of most designed objects relies on a standardized and automated manufacturing process. By contrast, much of moving an application from prototype to production and, indeed, maintaining the application through its lifecycle has often remained craftwork. In his session at Dev...
May. 29, 2015 12:00 PM EDT Reads: 1,489
Amazon, Google and Facebook are household names in part because of their mastery of Big Data. But what about organizations without billions of dollars to spend on Big Data tools - how can they extract value from their data? In his session at 6th Big Data Expo®, Ali Ghodsi, Co-Founder and Head of Engineering at Databricks, discussed how the zero management cost and scalability of the cloud is addressing the challenges and pain points that data engineers face when working with Big Data. He also s...
May. 29, 2015 12:00 PM EDT Reads: 4,306
The 4th International Internet of @ThingsExpo, co-located with the 17th International Cloud Expo - to be held November 3-5, 2015, at the Santa Clara Convention Center in Santa Clara, CA - announces that its Call for Papers is open. The Internet of Things (IoT) is the biggest idea since the creation of the Worldwide Web more than 20 years ago.
May. 29, 2015 12:00 PM EDT Reads: 1,754
SYS-CON Events announced today that EnterpriseDB (EDB), the leading worldwide provider of enterprise-class Postgres products and database compatibility solutions, will exhibit at SYS-CON's 16th International Cloud Expo®, which will take place on June 9-11, 2015, at the Javits Center in New York City, NY. EDB is the largest provider of Postgres software and services that provides enterprise-class performance and scalability and the open source freedom to divert budget from more costly traditiona...
May. 29, 2015 11:00 AM EDT Reads: 1,589
An entirely new security model is needed for the Internet of Things, or is it? Can we save some old and tested controls for this new and different environment? In his session at @ThingsExpo, New York's at the Javits Center, Davi Ottenheimer, EMC Senior Director of Trust, reviewed hands-on lessons with IoT devices and reveal a new risk balance you might not expect. Davi Ottenheimer, EMC Senior Director of Trust, has more than nineteen years' experience managing global security operations and asse...
May. 29, 2015 11:00 AM EDT Reads: 5,701
The Internet of Things is a misnomer. That implies that everything is on the Internet, and that simply should not be - especially for things that are blurring the line between medical devices that stimulate like a pacemaker and quantified self-sensors like a pedometer or pulse tracker. The mesh of things that we manage must be segmented into zones of trust for sensing data, transmitting data, receiving command and control administrative changes, and peer-to-peer mesh messaging. In his session a...
May. 29, 2015 11:00 AM EDT Reads: 4,021
The multi-trillion economic opportunity around the "Internet of Things" (IoT) is emerging as the hottest topic for investors in 2015. As we connect the physical world with information technology, data from actions, processes and the environment can increase sales, improve efficiencies, automate daily activities and minimize risk. In his session at @ThingsExpo, Ed Maguire, Senior Analyst at CLSA Americas, will describe what is new and different about IoT, explore financial, technological and re...
May. 29, 2015 10:50 AM EDT Reads: 342
Andi Mann has been serving as Conference Chair of the DevOps Summit since its inception. He is one of the world's recognized leaders in DevOps, and continues to be one of its most articulate advocates. Here are some recent thoughts of his in an interview we conducted in the run-up to the DevOps Summit to be held June 9-11 at the Javits Center in New York City. When did you first start thinking about DevOps and its potential impact on enterprise IT? Andi: I first started thinking about DevOps b...
May. 29, 2015 10:33 AM EDT Reads: 393