SYS-CON MEDIA Authors: Pat Romanski, Elizabeth White, Zakia Bouachraoui, Liz McMillan, William Schmarzo

Blog Feed Post

Adults with Autism sent hundreds of miles away from their families

Friday 5 September, 2014
Adults with Autism sent hundreds of miles away from their families National Leading Autism Campaigner & Ambassador for Autism, Kevin Healey, is outraged by the system that is currently not supporting people with Autism. This has resulted in many individuals being sent hundreds of miles away from their loved ones and therefore destroying families. The system is simply not geared up for Adults with Autism. Kevin Healey has been campaigning since December 2013 on behalf of both the Dyer Family in Wales and Leo Andrade-Martinez from London; both of these families have an adult on the autistic spectrum who has been sent hundreds of miles away from their home and city. Kevin Healey said: "I’m appalled that these parents are suffering on a daily basis in not having access to their children and it’s heartbreaking for all of them, because they can’t see their families. The Dyers have to travel a 10 hour round trip to see Claire who is locked away alone and isolated from her family." Claire’s mum, Catherine said: “Claire is our autistic 20 year old daughter. She has been on MHA Section 3 since last September, but despite this had been home with us 262 times out of 325 days. Her behaviour was far worse in the unit that she was in. She has been in the community with us loads - shopping, walking the dog along Swansea sea front, in Cardiff, swimming in the LC2 and with an NAS group, meeting friends, even doing the race for life in Swansea on July 27th. Unfortunately a high court judge ruled on August 1 that despite being very sympathetic to the situation, that Claire would have to go to a medium secure hospital in Brighton, 5 hours away, as the professionals all felt that this is what she needed, against her and our wishes. It’s so distressing that despite her being home daily, she is now only entitled to a 2 hour supervised visit weekly, which means a 10 hour round trip for us. She phones 4 or 5 times daily and is desperate to get home to us. We all miss her desperately, and her sister and brother can't understand how this could have happened to her. We just want our daughter to be happy, and have the life that she deserves and was promised - a bespoke placement to be ready by October 2013. Not locked up hours away from her family, friends and community where she is heartbroken “ Leo Andrade-Martinez from Islington, London, is mum to Stephen 19, who has severe autism and was placed into a psychiatric  Hospital in  Northampton, which is 80 miles from their Islington home. Stephen at present is in a self-harming ward, not an autism specialist unit and as Leo clearly states; this is not acceptable, he has autism, he is not mentally ill. What is particularly heartbreaking is that Stephen has no social life; he is locked up 24 hours a day, 7 days a week. Leo has to travel to Northampton; it should be care in the community as we are in the 21st century. This simply shouldn’t be happening, these adults need the correct provision and support, and because the system can’t deal with them, they get locked up like criminals, they are not! They are autistic with needs. Leo said: “ My son has been at the hospital for 19 months and is treated as if he is either mentally ill or a criminal. He is under the Mental Health Act. He has no quality of life, no freedom. He is locked up 24/7 and is on heavy antipsychotic medication and sedatives, so that they don't have to deal with his behaviour. So I say, enough is enough! I am calling on Norman Lamb. If my son is not having a good day or is unsettled they won't take him out into the grounds, this is a huge space which Stephen would love. He goes for weeks and months without going outside into the grounds. For the past 15 months he has not been taken out into the community, we only get to see him once a week, for only two hours, and sometimes when we arrive for the two hour visit they won’t even allow that. They say to us, ‘only for a few minutes’ or tell us to leave" Kevin Healey is calling for the Wales Minister, Mark Drakeford and the Minister for England, Norman Lamb, to take urgent action on these two cases . However this is just the tip of the iceberg as there are many other similar cases happening across the country. National campaigner Kevin Healey set up both Catherine’s and Leo’s petitions on change.org and they have attracted over 60,000 signatures.


Distributed by http://www.pressat.co.uk/

Read the original blog entry...

Latest Stories
DevOps tends to focus on the relationship between Dev and Ops, putting an emphasis on the ops and application infrastructure. But that’s changing with microservices architectures. In her session at DevOps Summit, Lori MacVittie, Evangelist for F5 Networks, will focus on how microservices are changing the underlying architectures needed to scale, secure and deliver applications based on highly distributed (micro) services and why that means an expansion into “the network” for DevOps.
In his keynote at 18th Cloud Expo, Andrew Keys, Co-Founder of ConsenSys Enterprise, provided an overview of the evolution of the Internet and the Database and the future of their combination – the Blockchain. Andrew Keys is Co-Founder of ConsenSys Enterprise. He comes to ConsenSys Enterprise with capital markets, technology and entrepreneurial experience. Previously, he worked for UBS investment bank in equities analysis. Later, he was responsible for the creation and distribution of life settl...
Contextual Analytics of various threat data provides a deeper understanding of a given threat and enables identification of unknown threat vectors. In his session at @ThingsExpo, David Dufour, Head of Security Architecture, IoT, Webroot, Inc., discussed how through the use of Big Data analytics and deep data correlation across different threat types, it is possible to gain a better understanding of where, how and to what level of danger a malicious actor poses to an organization, and to determin...
@CloudEXPO and @ExpoDX, two of the most influential technology events in the world, have hosted hundreds of sponsors and exhibitors since our launch 10 years ago. @CloudEXPO and @ExpoDX New York and Silicon Valley provide a full year of face-to-face marketing opportunities for your company. Each sponsorship and exhibit package comes with pre and post-show marketing programs. By sponsoring and exhibiting in New York and Silicon Valley, you reach a full complement of decision makers and buyers in ...
There are many examples of disruption in consumer space – Uber disrupting the cab industry, Airbnb disrupting the hospitality industry and so on; but have you wondered who is disrupting support and operations? AISERA helps make businesses and customers successful by offering consumer-like user experience for support and operations. We have built the world’s first AI-driven IT / HR / Cloud / Customer Support and Operations solution.
LogRocket helps product teams develop better experiences for users by recording videos of user sessions with logs and network data. It identifies UX problems and reveals the root cause of every bug. LogRocket presents impactful errors on a website, and how to reproduce it. With LogRocket, users can replay problems.
Data Theorem is a leading provider of modern application security. Its core mission is to analyze and secure any modern application anytime, anywhere. The Data Theorem Analyzer Engine continuously scans APIs and mobile applications in search of security flaws and data privacy gaps. Data Theorem products help organizations build safer applications that maximize data security and brand protection. The company has detected more than 300 million application eavesdropping incidents and currently secu...
Rafay enables developers to automate the distribution, operations, cross-region scaling and lifecycle management of containerized microservices across public and private clouds, and service provider networks. Rafay's platform is built around foundational elements that together deliver an optimal abstraction layer across disparate infrastructure, making it easy for developers to scale and operate applications across any number of locations or regions. Consumed as a service, Rafay's platform elimi...
Kubernetes is a new and revolutionary open-sourced system for managing containers across multiple hosts in a cluster. Ansible is a simple IT automation tool for just about any requirement for reproducible environments. In his session at @DevOpsSummit at 18th Cloud Expo, Patrick Galbraith, a principal engineer at HPE, discussed how to build a fully functional Kubernetes cluster on a number of virtual machines or bare-metal hosts. Also included will be a brief demonstration of running a Galera MyS...
In his general session at 21st Cloud Expo, Greg Dumas, Calligo’s Vice President and G.M. of US operations, discussed the new Global Data Protection Regulation and how Calligo can help business stay compliant in digitally globalized world. Greg Dumas is Calligo's Vice President and G.M. of US operations. Calligo is an established service provider that provides an innovative platform for trusted cloud solutions. Calligo’s customers are typically most concerned about GDPR compliance, application p...
Growth hacking is common for startups to make unheard-of progress in building their business. Career Hacks can help Geek Girls and those who support them (yes, that's you too, Dad!) to excel in this typically male-dominated world. Get ready to learn the facts: Is there a bias against women in the tech / developer communities? Why are women 50% of the workforce, but hold only 24% of the STEM or IT positions? Some beginnings of what to do about it! In her Day 2 Keynote at 17th Cloud Expo, Sandy Ca...
Two weeks ago (November 3-5), I attended the Cloud Expo Silicon Valley as a speaker, where I presented on the security and privacy due diligence requirements for cloud solutions. Cloud security is a topical issue for every CIO, CISO, and technology buyer. Decision-makers are always looking for insights on how to mitigate the security risks of implementing and using cloud solutions. Based on the presentation topics covered at the conference, as well as the general discussions heard between sessio...
New competitors, disruptive technologies, and growing expectations are pushing every business to both adopt and deliver new digital services. This ‘Digital Transformation’ demands rapid delivery and continuous iteration of new competitive services via multiple channels, which in turn demands new service delivery techniques – including DevOps. In this power panel at @DevOpsSummit 20th Cloud Expo, moderated by DevOps Conference Co-Chair Andi Mann, panelists examined how DevOps helps to meet the de...
Fact: storage performance problems have only gotten more complicated, as applications not only have become largely virtualized, but also have moved to cloud-based infrastructures. Storage performance in virtualized environments isn’t just about IOPS anymore. Instead, you need to guarantee performance for individual VMs, helping applications maintain performance as the number of VMs continues to go up in real time. In his session at Cloud Expo, Dhiraj Sehgal, Product and Marketing at Tintri, sha...
According to Forrester Research, every business will become either a digital predator or digital prey by 2020. To avoid demise, organizations must rapidly create new sources of value in their end-to-end customer experiences. True digital predators also must break down information and process silos and extend digital transformation initiatives to empower employees with the digital resources needed to win, serve, and retain customers.